SWAN UK (Syndromes Without A Name) is a project run by Genetic Alliance UK offering support and information to families of children with undiagnosed genetic conditions
As you are probably aware by now, SWAN UK was delighted to work with the ITV network to have a day of reports highlighting the issues faced by families children with undiagnosed genetic conditions. Most of the interviews are now up on our YouTube channel so if you missed them the first time, or simply want to watch them again (let’s face it, the kids are so cute who can resist watching over and over again?!) then grab yourself a cuppa and settle down to watch . .
Over on our SWAN UK You Tube channel we are building up quite a collection for the lovely little Daniel – it’s impossible to watch without smiling and giggling along!
Come see more videos of all our beautiful little swans by clicking here
