What is a short break?

A short break is what used to be called ‘respite’ – the name was changed to reflect that it is not just about you having a break from your caring responsibilities but that it is also time for your child to spend time with someone else who can help them try new things or have fun (after all it would never be a proper break for you if you knew your child was unhappy whilst away from you!)

 

Asking for short breaks is not a sign you are a bad parent or not coping – in fact by having a regular break you will probably be a better carer as you will have time to recharge your batteries.  It will also give your disabled child the chance to have fun with someone else and experience new things so you will have more to talk about when you see each other again! Short breaks can also provide time for you to have some crucial one on one time with any siblings or with your partner.

Over the next few years £800 million will be provided to Local Authorities to provide short breaks for families of disabled children.  Unfortunately this money has not been ring fenced (ring fenced means it is not allowed to be spent on anything else) but it has been committed by national government through the Early Intervention Grant given to Local Authorities.

Since Oct 2011 all local authorities have been required by law to publish a statement about what short breaks are available for families of disabled children in their area – you should be able to find this by googling ‘disabled children short break + your local council’

This statement should tell you what short breaks are,  who they are for, what is on offer and how you can access them.

 

 

Short breaks are not only for families where parents are finding their caring difficulties difficult – they are also for any family who would benefit from them.  The law says:

” 3.  In performing their duty under paragraph 6(1)(c) of Schedule 2 to the 1989 Act(3), a local authority must—

(a)have regard to the needs of those carers who would be unable to continue to provide care unless breaks from caring were given to them; and

(b)have regard to the needs of those carers who would be able to provide care for their disabled child more effectively if breaks from caring were given to them to allow them to—

(i)undertake education, training or any regular leisure activity,

(ii)meet the needs of other children in the family more effectively, or

(iii)carry out day to day tasks which they must perform in order to run their household. “

(The Breaks for Carers of Disabled Children Regulations 2011, http://www.legislation.gov.uk/uksi/2011/707/made)

 

 

There can be different types of short breaks – Local Authorities should provide a range of different types of short breaks to help you care more effectively for your child.

These different types could be (all of them should be a positive experience for your child) :

- someone who comes into your house during the day or the night to care for your child

- your child going to an activity or club

- your child spending some time during the day or night somewhere else

- services that help you in the evenings, weekends and school holidays

 

The different types of short breaks are broken into 3 levels depending on how significant your child’s needs are:

- Universal : These services are open access activities which are also known as ‘mainstream’. You don’t need any kind of assessment for your child to be allowed to attend

- Targeted : These services usually have some kind of criteria which has been set by the local authority about which children can attend – for example your child might need to have to be awarded a certain level of DLA to attend.  You may be able to refer yourself or may need to be referred by your child’s school or LA support services

- Specialist : These services are for children with the highest and most complex needs. You will need to have a ‘child in need’ assessment first to look at what your child needs to support them.  Local authorities should have clear criteria about which children will be eligible for these services. (to find out more about child in need / social care assessments click here http://swanuk.wordpress.com/2011/07/18/social-care-support/)

 

Your child not having a diagnosis should not stop you from being able to access short breaks

If you are not sure how to find out about short break in your local area try asking a professional who works with your child or ring up your local social services and ask them about how you can access them.

 

 


Essential Items for your book shelf

Disabled Children – A Legal Handbook

“Disabled children: a legal handbook is an authoritative yet accessible guide to the legal rights of disabled children and their families in England and Wales. The authors expertly navigate the many, often overlapping, sources of law, explaining the difference between what public bodies must do to support disabled children and that which they may do  (http://www.ncb.org.uk/cdc/resources/legal_handbook.aspx)

“The handbook aims to empower disabled children and their families through a greater understanding of their rights and entitlements. It is essential reading for the families of disabled children, their advocates and lawyers, voluntary and statutory sector advisers, commissioners, managers and lawyers working for public authorities, education, social and health care professionals, students and academics” (http://www.ncb.org.uk/cdc/resources/legal_handbook.aspx)

Chapters of the book are available to download as free PDF’s from the Council for Disabled Children here http://bit.ly/gRH0pU

You can buy the book for £40 from the Legal Action Group Website here   http://bit.ly/92rdGg

SEN Code of Practice

The SEN Code of Practice lays out clear guidelines for supporting children with special needs in school.

You can order your free copy here and shouldn’t ever go into school without it!  http://bit.ly/qp7FpT


Social Care Support

 Sometimes everyone needs some help, this is not a sign you are weak or not coping – there is only so much one person can do.

Under section 17 of the 1989 Children’s Act all disabled children are classed as ‘Children in Need’.  This does not mean they will automatically be entitled to services but it does mean you can ask for an assessment of need.

It is a good idea to email / write to people as much as possible so that you have a ‘paper trail’ – get a specific folder and keep copies of all letters / reports etc that you send / receive.

There are 2 main ways to access support ;

1. Common Assessment Framework – for children with additional needs who are known to more than one agency and require extra support but do not neccesarily need a full social care assessment.   Can be undertaken by any proffessioanl working with the fmaily.

2. Child in Need Core Assessment – in-depth assessment undertaken by a qualified social worker.

All social care assessments of need are based on the following triangle:

Common Assessment Framework (CAF)

If your child’s needs are not high enough to meet the social work threshold for support but there is more than one agency involved with them you can ask for a CAF to be completed.

This is a standardised form which will identify your child’s additional needs and what agencies need to be involved to help meet them.

You can access the pre-CAF checklist and the form here http://www.cwdcouncil.org.uk/caf

There will then be a multi agency meeting with you and the relevant professionals to plan what needs to be done.  There is a pre-assessment checklist that is used to identify if a CAF needs to be undertaken – a copy is enclosed in this pack.

The CAF process cannot be done without your permission and is intended to make things easier for you.  You should have one point of contact so you don’t have to keep repeating yourself to numerous different professionals.

You can ask any professional involved with your child to start the CAF process.

The CAF form should be completed in partnership with you and there should be specific targets / outcomes agreed by all involved in the multi agency (also known as Team Around the Child – TAC) meeting (MAM).  If progress does not seem to be happening and the CAF targets are not being met you can then use this as evidence to request a full Child in Need assessment.

You can also find more information about the CAF online here:

http://www.cwdcouncil.org.uk/caf

Child in Need Assessments

Under Section 17 of the 1989 Children’s Act disabled children are automatically classed as ‘children in need’.   This means that if your child is disabled you should not be denied an initial assessment:

“3.19 As all ‘disabled’ children are children ‘in need’, then any referral of a disabled child to children’s services should result in an initial assessment. The only time an initial assessment will not be required is if the family are satisfied by services being provided informally through some form of ‘local offer’; but if an initial assessment is requested there is no legitimate way for an authority to avoid carrying one out if it accepts that the child is ‘disabled’ or otherwise ‘in need’ (see para 3.6).” (Disabled Children : A Legal Handbook, Steve Broach et al, 2010)

As a parent you can make a request directly to your local social care team for your childs needs to be assessed (although this does not necessarily mean you will be able to access services). If you would like a template letter please contact SWAN on the details below.  At this time you should also request a carers assessment for yourself  (this is not to judge you on your ability to cope!) as this may identify areas where you could benefit from support in your own right. You can find out more about Carers Assessments here -  http;//tinyurl.com/2kfj6z

If you are denied an initial assessment there is a template letter you can download to send available here - http://www.edcm.org.uk/media/8269/assessment_letter.pdf

There is a specific document that lays out the framework for Child in Need assessments.  It is published by the Department for Health and is called ‘Framework for the Assessment of Children in Need and their Families’ (2000).

You can download the framework here http://bit.ly/coCBKk

The framework sets down very specific time frames for the assessment process that local authorities need to follow:

From the point of referral the social work team have 1 working day to decide whether to assess or not (all disabled children should get past this point)

3.8 There is an expectation that within one working day of a referral being received or new information coming to or from within a social services department about an open case, there will be a decision about what response is required. A referral is defined as a request for services to be provided by the social services department. The response may include no action, but that is itself a decision and should be made promptly and recorded. The referrer should be informed of the decision and its rationale, as well as the parents or caregivers and the child, if appropriate.

 (‘Framework for the Assessment of Children in Need and their Families, 3.8, p31 (2000)

They then have 7 working days to undertake an initial assessment to identify if a core assessment is needed

3.9 A decision to gather more information constitutes an initial assessment. An initial assessment is defined as a brief assessment of each child referred to social services with a request for services to be provided. This should be undertaken within a maximum of 7 working days but could be very brief depending on the child’s circumstances. It should address the dimensions of the Assessment Framework, determining whether the child is in need, the nature of any services required, from where and within what timescales, and whether a further, more detailed core assessment should be undertaken. An initial assessment is deemed to have commenced at the point of referral to the social services department or when new information on an open case indicates an initial assessment should be repeated. All staff responding to referrals and undertaking initial assessments should address the dimensions which constitute the Assessment Framework.

 (‘Framework for the Assessment of Children in Need and their Families, 3.9, p 31, 2000)

The initial assessment may include :

  • interviews with child and family
  • other agencies as appropriate
  • record of initial anlaysiis
  • recrod of decisions
  • informing other agencies of decision
As part of the initial assessment the social worker will decide whether or not to undertake a ‘core assessment’ – this is a more indepth analsis of your child’s needs.
The local authority has 35 days to complete the core assessment of need :

3.11 A core assessment is defined as an in-depth assessment which addresses the central ormost important aspects of the needs of a child and the capacity of his or her parents or caregivers to respond appropriately to these needs within the wider family and community context.

The timescale for completion of the core assessment is a maximum of 35 working days.

A core assessment is deemed to have commenced at the point the initial assessment ended, or a strategy discussion decided to initiate enquiries under s47, or new information obtained on an open case indicates a core assessment should be undertaken.

Appropriate services should be provided whilst awaiting the completion of the specialist assessment.

 (‘Framework for the Assessment of Children in Need and their Families, 3.11 p 32, 2000)

The Framework also makes clear that these time frames are important :

3.3 The response from social services departments to an initial contact or a referral requesting help is critically important. (3.3, p 29)

3.7 Time, as discussed in Chapter 1, is critical in a child’s life. A timely response to responding to a child’s needs means that the process of assessment cannot continue unchecked over a prolonged period without an analysis being made of what is happening and what action is needed, however difficult or complex the child’s circumstances.

 Prior to the publication of the Government’s Objectives for children’s social services (Department of Health, 1999), no timescales had been set for completing assessments of children in need, although there had been timescales for action to be taken to protect children where there were concerns that a child was suffering or likely to suffer significant harm. This has now been remedied and timescales have been specified in the objectives for children’s social services.   (Disabled Children – A Legal Handbook, 3.7 p 31)

‘Disabled Children : A Legal Handbook” by Steve Broach et el (2010) also states that :

3.9 In the absence of any confirmed diagnosis, a child may still be a ‘child in need’ by virtue of requiring services for the reasons specified in section 17(10)(a) or (b). Moreover, any insistence on a medical diagnosis by a children’s services authority before a child is deemed to be ‘disabled’ within section 17(10)(c) might be considered anomalous given the professed universal social work commitment to the ‘social model’ of disability (see paras 1.5–1.7). In any event, there is a low threshold for social care assessments,7 which should be carried out if a child may be ‘in need’ (one of the potential outcomes of the assessment being a decision that he or she is not in fact ‘in need’). (Disabled Children – A Legal Handbook, Chapter 3, 3.9)

If you can show that your child needs support according to the triangle above then you should not be denied an assessment just because you don’t have a diagnosis.
The legal handbook also identifies that there are certain basic principles that should underpin asessments :

“There are, however, some very basic principles which should underpin all assessments of disabled children and their families. Assessments should be needs-led rather than dictated by available provision. In consultation with all the children and adults concerned, the assessment process should identify first, the barriers that inhibit the child and family living an ordinary life and second, what can be done by the support agencies to tackle them.

Assessment should take account of the needs of the whole family and individuals within it; while some services may be provided directly to a disabled child, others may be offered to parents or siblings (see chapter 8 for duties to adult and child carers). The agreed provision or arrangements following assessment may not necessarily take the form of what are usually seen as social care ser-vices.

There has also been a growing emphasis on assessment practice that adopts an outcome focus. This means that the practitioner undertaking the assessment, together with the children and adults in the family, identifies a range of outcomes that are import-ant to help the family to live a more ordinary life. All involved then agree on the provision that could make those outcomes happen.  The effective-ness of any intervention is then judged on the extent to which the identified outcomes are achieved. Assessments should be undertaken and provision put in place promptly and children and their families should not have to wait for essential services. Early intervention is regarded as important in order to avoid families reaching crisis point.19 Finally, because children grow and develop and family circumstances change, assessment of need should not be seen as a one-off event but should be repeated as required, while avoiding the burden that unnecessary repetitious assessments impose on families.”

(Disabled Children – A Legal Handbook, 3.12, chapater 3)

The local authority cannot set eligibility criteria to decide if it will assess need – it has a statuatory duty to assess children in need.
Having a core assessment done does not automatically mean you will receive a service – however if the core assessment indetifies a need for a service then the local authority is usually obliged to meet this need (depending which act the need was assessed under)  - the Legal Handbook states :
“Once needs have been established, then they must be met and cost cannot be an excuse for failing to meet them. The manner in which they are met does not have to be the most expensive. The Council is perfectly entitled to look to see what cheapest way for them to meet the needs which are specified.

It follows that councils cannot, in such situations, seek to delay or attempt further rationing – for instance by placing a person on a waiting list

or suggesting that the case needs to go to a ‘panel”  (Disabled Children – A Legal Handbook, 3.45 chapater 3)

If your child has been assessed as having a need in their core asessment but you are not getting any support is is a good idea to get legal advice as things can get a little bit complicated – the last few pages of this document list solicitors who specialise in disabled children’s law http://www.ncb.org.uk/edcm/Using_the_Law_to_Fight_Cuts.pdf

If your child’s service has been taken away or reduced due to public spending cuts you should also seek legal advice.

You can also  download the social care chapter of ‘Disabled Children : A Legal Handbook’ here http://www.ncb.org.uk/cdc/CDC_LH_Chap_3c.pdf

If you are not happy with the way your child’s assessment was undertaken or you think that they have not followed the time frames set you can complain to your local authority.   In the first instance you should write to the manager of the service you are complaining about – make sure you make it clear that you are making a ‘stage one’ complaint and request a written response from them in the time frame shown by their complaints policy.

If you are not happy with this response ‘stage two’ is where there is a more indepth investisgation, usually by someone from a different department.

Stage three is when you complain to the local authority ombudsman http://www.lgo.org.uk/making-a-complaint/

You can find out more about your local authorities complaints procedures and who to complain to here http://www.direct.gov.uk/en/Diol1/DoItOnline/DG_4018266 by typing in your post code.

You can also find out more about

* Please note – Whilst every attempt has been made to ensure that the information provided here is correct, the law relating to social care can be very complex and it is always a good idea to seek legal advice if you think your rights are not being met. Links provided are for information only and their inclusion does mean the organisations featured are endorsed by Genetic Alliance UK.


Disabled Children : A Legal Handbook

“Disabled children: a legal handbook is an authoritative yet accessible guide to the legal rights of disabled children and their families in England and Wales. The authors expertly navigate the many, often overlapping, sources of law, explaining the difference between what public bodies must do to support disabled children and that which they may do  (http://www.ncb.org.uk/cdc/resources/legal_handbook.aspx)

“The handbook aims to empower disabled children and their families through a greater understanding of their rights and entitlements. It is essential reading for the families of disabled children, their advocates and lawyers, voluntary and statutory sector advisers, commissioners, managers and lawyers working for public authorities, education, social and health care professionals, students and academics” (http://www.ncb.org.uk/cdc/resources/legal_handbook.aspx)

Chapters of the book are available to download as free PDF’s from the Council for Disabled Children here http://www.ncb.org.uk/cdc/resources/legal_handbook.aspx

You can buy the book for £40 from the Legal Action Group Website here http://www.lag.org.uk/Templates/System/Publications.asp?NodeID=93342&Mode=display


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